Many Americans have stories to tell about failures in care when a family member became ill. Mine runs from 2005 through 2016, when I was a family caregiver for my mother, father, and aunt.
During the last few years of their lives, they were in and out of hospitals and received treatment after discharge in almost every possible setting — rehabilitation units, home health care, nursing homes, hospice, and more. Yet I can’t recall ever having a discussion with a hospital staff member about how to choose post-discharge care. Instead, I was often handed a list of facilities or agencies and, with little guidance about what to look for, was sent on a shopping expedition.